Support PPI/E Leads
Provide Guidance, Training and Share Best Practice
Support CRFs with their PPI/E Strategy
If your CRF needs support writing a PPI/E strategy, please contact us.
Understand Patient and Public Research Experiences
The PPI/E Theme Group recently carried out its second Public Research Awareness Survey involving 20 CRFs collecting over 2400 responses. Findings of this survey can be viewed here.
Promote the Patient Research Ambassador Initiative
A national Patient Research Ambassador (PRA) case study template has been shared with the PPI/E Leads to write case studies about PRA activities within CRFs. Case studies are uploaded to the PRAI website to achieve national coverage.
A survey of PRA involvement within CRFs is planned to establish how we can support CRFs with this initiative.
Collaborate with INVOLVE
The PPI/E Theme Group has worked with the INVOLVE Learning and Development Group lead by Martin Lodemore to produce induction information for researchers, public and staff new to PPI/E roles.
INVOLVE have shared their PPI/E Activity Report Form with our PPI/E Theme Group. The Report Form enables PPI/E officers to map their activities to INVOLVE standards. It is recommended that the form is used by CRFs to help PPI/E leads map their activities and progress.
We have put together a PPI/E group to support PPI/E leads, disseminate information and to help progress with our objectives. The Group is Chaired by Jenny Preston, Senior Patient and Public Involvement Lead for the NIHR Alder Hey CRF.
A distribution list of PPI/E leads is used for communication and we store shared resources online for members to access.
If you are a PPI/E lead and would like to join this group please contact us by clicking here.
The below links lead to external websites.
Support PPI Activity in your CRF
- Identify staff to help / lead / deliver on specific pieces of work
- Disseminate information from the PPI/E Theme Group
- Keep the PPI/E Theme Group informed of newly appointed PPI/E Leads so that support can be offered and information shared