The Involvement and Inclusion Work Package Group provides a forum for Clinical Research Facility (CRF) Patient & Public Involvement & Engagement (PPIE) and Research Inclusion Leads to support initiatives, expand involvement with the Research Champion programme and link with national PPIE and Research Inclusion groups and initiatives.
Involvement Working Group Chair: Cat Harvey
PPIE Lead at NIHR Kings Clinical Research Facility
Inclusion Working Group Chair: Sittana Abdelmagid
Alzheimer’s Society UKDTN Lead Research Nurse at NIHR UCLH Clinical Research Facility
This page is designed for CRF staff and others in PPI/E roles. If you are a patient or member of the public you can find information about how to get involved in research by clicking here.
Work Package Strategies
Our Public Involvement Strategy (2023 – 2028) details how we plan to achieve and build on our successful track record of supporting CRF collaboration with PPIE and participation activities.
Our Equality, Diversity and Inclusion (EDI) Strategy (2023-2028) highlights our ambition and responsibilities to develop and strengthen EDI culture across the whole of the UKCRF Network.
We provide annual reports to the NIHR Central Commissioning Facility detailing the progress in delivery of the strategies.
Work Package Activities
Support CRF PPIE and Research Inclusion Leads
The Involvement and Inclusion Work Package Group provides CRF PPIE and Research Inclusion Leads with guidance and support to deliver their local strategies. For support, or to get involved with the Involvement and Inclusion Work Package Groups, please contact us.
Provide Guidance, Training and Share Best Practice
PPIE and Research Inclusion activities and tools are shared via quarterly Involvement and Inclusion Work Package Group meetings (normally held online), at the Network’s Annual Conference, and via this website, Portal and social media. The Group has also ensured that PPIE and Research Inclusion guidance is included in the UKCRF Induction Framework.
Understand CRF PPIE and Research Inclusion Challenges
To gain an understanding of the CRF PPIE and Research Inclusion landscape, including workforce and areas of priority, in 2023 the Involvement and Inclusion Work Package conducted surveys amongst CRF PPIE and Research Inclusion Leads.
Task and Finish Groups
In response to survey findings, 3 Task & Finish Groups were established in 2024 to work on the following areas identified as a priority for PPIE and Research Inclusion Staff.
- Demographic Data Collection, led by Deborah Moll, NIHR Oxford Health CRF
- Engaging with Underserved Communities, led by Hanif Ismal, NIHR Leeds CRF
- Training, led by Asha Vikraman, NIHR Imperial CRF
Support CRFs with their PPIE and Research Inclusion Action Plans
If your CRF needs support writing a PPIE and/or Research Inclusion action plan, please contact us.
Collaborate with National PPIE and Research Inclusion Infrastructure
The Involvement and Inclusion Work Package Group have developed relationships with other groups and organisations invested in PPIE and Research Inclusion, this includes the NIHR and UKRD.
How you can support PPIE and Research Inclusion activity in your CRF
- Identify staff to help / lead / deliver on specific pieces of work
- Disseminate information from the PPI/E Work Package Group
- Keep the Involvement and Inclusion Work Package Group informed of newly appointed PPIE and Research Inclusion Leads so that support can be offered and information sharedn be offered and information shared
